Showing posts with label physio. Show all posts
Showing posts with label physio. Show all posts
End of Treatment Bubble
It has now been three weeks since Hugo took his last dose of chemotherapy. So what does life on the other side look like?
In many ways it doesn't look very different to life on treatment. There has been medication every day, (although not the yucky chemotherapy or steroid type), the nurse has been twice and the physio has visited Hugo at school. We have all had colds and the worry that Hugo's will develop into something more serious has been there, just like it has been for over 3 years.
Day in the Life - Hospitals
Labels:
bone density scan,
GOSH,
maintenance phase,
nerve conduction,
physio,
Vincristine,
x-ray
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Hugo started the maintenance phase of his treatment plan in January 2016. It's the final phase of treatment and is made up of 12 cycles, each of which are 12 weeks long. However, each 4 week block is the same so we tend to count in months rather than cycles.
A Bumpy Road
A few months ago I wrote about a bump in the road. Hugo had broken his leg and there were questions over his bone density and muscle weakness. My head was spinning with all the 'what ifs' as we waited for answers.
Hugo has been unable to walk since the break. There has been an inconclusive bone density scan, a painful nerve conduction test, a pause from medication, X-rays and most recently an MRI scan to rule out neurological or spinal issues. He has had physio, hydrotherapy and daily exercises. We have had more frequent visits to Great Ormond Street Hospital as they try to understand what is going on and help him get back on his feet. It has been over six months since the plaster cast came off. There are still questions, uncertainty and worry and I am still wondering just how big this bump in the road is.
Today I cried
Today I cried. Not a huge great sob fest, just a little tear, catching me unaware. I cry fairly easily. Sad books or films on the TV, even adverts have been known to set me off. However I don't often cry because of Hugo's illness. I think the fight in me stops me, it just feels pointless, a waste of my time and of no use to Hugo. But today I did, just a little.
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