Showing posts with label maintenance. Show all posts
Showing posts with label maintenance. Show all posts

What is maintenance all about?

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We have now reached the end of our first 12 week cycle of the maintenance phase.  We are slowly adjusting to another new normal, one that will last a long time.

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A Mini Holiday

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Our first mini holiday.  3 nights in the Cotswolds.  Our first chance since Hugo's diagnosis nearly 9 months ago to get away.  An opportunity to forget everything else that is going on, to relax, have fun and be together.  Most importantly, a chance to be a normal family, doing normal family things.

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Reaching Maintenance - Yay!

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Today saw us back at GOSH for a second attempt at starting maintenance.  Hugo's rosy cheeks had gone and his bloods were up a little, so we were hopeful that this time would be more successful.

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False Start

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So today we set off to GOSH for the start of the maintenance phase.

Hugo's bloods were taken on Friday and they were still a little low, but we'd checked with GOSH and they were confident they would increase enough over the weekend to allow us to start maintenance today.

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