Showing posts with label mercaptopurine. Show all posts
Showing posts with label mercaptopurine. Show all posts

Day in the Life - Medication

0
COM
I often get asked if Hugo is still on chemotherapy. Has he finished, or is he due another cycle? Treatment for blood cancers can differ from other cancer treatment plans. It is often long, in some cases life long, and I think this can be difficult to comprehend - I know it was for us when we were told his treatment would last for over 3 years. Hopefully this explains a little more about the medication, chemo and otherwise, that Hugo takes for his type of leukaemia (acute lymphoblastic leukaemia).

What is maintenance all about?

0
COM
We have now reached the end of our first 12 week cycle of the maintenance phase.  We are slowly adjusting to another new normal, one that will last a long time.

So this is Christmas

0
COM
It was a close call, the week leading up to Christmas had seen 4 hospital visits, only one of which had been scheduled, but we made it through Christmas with no hospital stays, yay!

Phase 4 Part 2

0
COM
So we are now in the second part of phase 4.  Along with the cyclophosphamide, Friday's visit to GOSH saw us restarting the dreaded mecaptopurine.  Another 2 weeks of the yucky, nil by mouth chemo that Hugo really dislikes.

Raising the Bar

0
COM
Today sees the end of phase 3.  Another one down, go Hugo!

I gave Hugo his last dose of mecaptopurine earlier this week.  He will have to resume taking it in a few weeks, but for the moment it's off the drugs menu.  I did a little celebratory dance and song, although I'm not sure Hugo was too impressed.  It has been so good to be able to get him up from his naps without the syringe of doom in my hand.  No tears, no struggle, just happy Hugo. We can now eat whenever we like, unrestricted by Hugo's 'non eating time', which I know Henry in particular will be pleased about.  Hugo and I used the occasion to have a biscuit - any excuse!

We're going to the Zoo!

0
COM
Today marks the 2 month anniversary of Hugo's diagnosis.  It feels like we have come a huge distance in that time.  The immediate shock has been replaced with new emotions, equally as difficult, but perhaps less intense.  We have found our way in the darkness, adjusted somewhat to the new normal and found light in the amazing way Hugo has coped with his journey so far.  His strength has been contagious and we are all still standing strong.

Grandad on Duty

0
COM
Yesterday saw us heading up to GOSH for another dose of methotrexate administered by lumber puncture.  This was our fourth trip since being discharged and we have been starting to feel like pros with our routine.  We know what time to leave the house (early!), the route, what to pack and what we need to help cheer Hugo up when he comes round from the anaesthetic.  However, this trip was different.  Richard and Henry were off to Legoland so grandad was on duty!