Showing posts with label nerve conduction. Show all posts
Showing posts with label nerve conduction. Show all posts
Day in the Life - Hospitals
Labels:
bone density scan,
GOSH,
maintenance phase,
nerve conduction,
physio,
Vincristine,
x-ray
·
Posted by
Lisa Griffiths
at
20:45
Hugo started the maintenance phase of his treatment plan in January 2016. It's the final phase of treatment and is made up of 12 cycles, each of which are 12 weeks long. However, each 4 week block is the same so we tend to count in months rather than cycles.
A Bumpy Road
Labels:
acute liver failure,
acute lymphoblastic leukaemia,
bone density,
childhood cancer,
Great Ormond Street Hospital,
hydrotherapy,
MRI,
muscle weakness,
nerve conduction,
physio,
walking frame,
wheelchair,
x-ray
·
Posted by
Lisa Griffiths
at
10:36
A few months ago I wrote about a bump in the road. Hugo had broken his leg and there were questions over his bone density and muscle weakness. My head was spinning with all the 'what ifs' as we waited for answers.
Hugo has been unable to walk since the break. There has been an inconclusive bone density scan, a painful nerve conduction test, a pause from medication, X-rays and most recently an MRI scan to rule out neurological or spinal issues. He has had physio, hydrotherapy and daily exercises. We have had more frequent visits to Great Ormond Street Hospital as they try to understand what is going on and help him get back on his feet. It has been over six months since the plaster cast came off. There are still questions, uncertainty and worry and I am still wondering just how big this bump in the road is.
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