Showing posts with label methotrexate. Show all posts
Showing posts with label methotrexate. Show all posts

Day in the Life - Medication

0
COM
Labels: , , , , , , , , , , , , , · Posted by at
I often get asked if Hugo is still on chemotherapy. Has he finished, or is he due another cycle? Treatment for blood cancers can differ from other cancer treatment plans. It is often long, in some cases life long, and I think this can be difficult to comprehend - I know it was for us when we were told his treatment would last for over 3 years. Hopefully this explains a little more about the medication, chemo and otherwise, that Hugo takes for his type of leukaemia (acute lymphoblastic leukaemia).

Read more »

What is maintenance all about?

0
COM
Labels: , , , , , , , , , , , , · Posted by at
We have now reached the end of our first 12 week cycle of the maintenance phase.  We are slowly adjusting to another new normal, one that will last a long time.

Read more »

Roar!

2
COM
Labels: , , , , , · Posted by at
Hugo and I are currently at GOSH for his last high dose of methotrexate.  We are on Lion ward this time, rather than Giraffe ward as usual.  The nurses on Lion ward are of course lovely too, but I am a little sad we don't get to finish our time here on our usual and familiar ward.  We are not Lions, we are Giraffes!  Of course there is plenty of time to visit the Giraffe nurses as we try to fill our days here.

Read more »

Relishing Normal

0
COM
Labels: , , , , · Posted by at
We have been having a lovely normal week at home.  We've had the car serviced, been to Henry's parent's evening, I even managed to get my hair done.  This is excitement these days, getting to be normal.

Read more »

Interim Maintenance

3
COM
Labels: , , , , , , · Posted by at
Over the past couple of weeks Hugo has finished phase 2 of his treatment and started phase 3, interim maintenance.  No treatment break, this time we were straight into it. We were given the rest of Hugo's treatment plan, all 3 years of it. This means we also have an end date which is September 2018. For a planner like me it's good to know what we are dealing with, what is happening and when. However the pages and pages of treatment schedule which now sit in our blue folder are without doubt daunting.

Read more »

We're going to the Zoo!

0
COM
Labels: , , , , , , · Posted by at
Today marks the 2 month anniversary of Hugo's diagnosis.  It feels like we have come a huge distance in that time.  The immediate shock has been replaced with new emotions, equally as difficult, but perhaps less intense.  We have found our way in the darkness, adjusted somewhat to the new normal and found light in the amazing way Hugo has coped with his journey so far.  His strength has been contagious and we are all still standing strong.

Read more »

Grandad on Duty

0
COM
Labels: , , , , , , , · Posted by at
Yesterday saw us heading up to GOSH for another dose of methotrexate administered by lumber puncture.  This was our fourth trip since being discharged and we have been starting to feel like pros with our routine.  We know what time to leave the house (early!), the route, what to pack and what we need to help cheer Hugo up when he comes round from the anaesthetic.  However, this trip was different.  Richard and Henry were off to Legoland so grandad was on duty!

Read more »

Consolidation

0
COM
Labels: , , , , , · Posted by at
We are now 4 days into the second phase of Hugo's treatment, consolidation, a short phase at only 3 weeks.

Read more »

Phase 1 - Induction

0
COM
Labels: , , , , , , , , , , · Posted by at
It has been 4 days since Hugo was diagnosed.  We spent the first night at our local hospital and were then transferred by ambulance to Great Ormond Street Hospital (GOSH).  The last 4 days have been a whirlwind, an intense and often surreal experience.

Read more »
Subscribe to: Posts (Atom)