Showing posts with label Port. Show all posts
Showing posts with label Port. Show all posts

The New Normal

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We are slowly setting into life back at home, our new normal.  Things feel incredibly different and the 15 days we were away for don't seem a fair reflection of the journey we have been on.

It's strange being out and about.  I am very self conscious, like everyone can tell that things have changed, that I am now different.  I feel like people are staring at Hugo, even though no one has any reason to and I know it's all just in my imagination.  Hugo of course is taking it all in his stride and is loving being out and about after his 15 day confinement.

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Teardrops

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Since diagnosis, 7 days ago, I have had to hold Hugo as he cried while numerous medical staff tried time and time again to insert fresh cannulas into his small hands.  Telling him it will be okay, when it was anything but okay.  Knowing it needed to be done, but still feeling like the worst mum in the world.  Wondering whether the trust between us would be forever damaged.  Now today, they have surrendered and this morning me and his dad took him down to theatre to have a Port inserted.  This is small chamber which is placed under the skin, over the rib cage, which links up to the jugular vein in the neck.  It can be used to take blood and also give chemotherapy, fluids and blood products.  Hugo would have had one fitted in a few weeks, but it has become necessary to do it earlier than planned.
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