Showing posts with label UKALL 2011. Show all posts
Showing posts with label UKALL 2011. Show all posts

We're going to the Zoo!

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Today marks the 2 month anniversary of Hugo's diagnosis.  It feels like we have come a huge distance in that time.  The immediate shock has been replaced with new emotions, equally as difficult, but perhaps less intense.  We have found our way in the darkness, adjusted somewhat to the new normal and found light in the amazing way Hugo has coped with his journey so far.  His strength has been contagious and we are all still standing strong.

Grandad on Duty

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Yesterday saw us heading up to GOSH for another dose of methotrexate administered by lumber puncture.  This was our fourth trip since being discharged and we have been starting to feel like pros with our routine.  We know what time to leave the house (early!), the route, what to pack and what we need to help cheer Hugo up when he comes round from the anaesthetic.  However, this trip was different.  Richard and Henry were off to Legoland so grandad was on duty!

Phase 1 - Induction

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It has been 4 days since Hugo was diagnosed.  We spent the first night at our local hospital and were then transferred by ambulance to Great Ormond Street Hospital (GOSH).  The last 4 days have been a whirlwind, an intense and often surreal experience.