Day in the Life - Medication
I often get asked if Hugo is still on chemotherapy. Has he finished, or is he due another cycle? Treatment for blood cancers can differ from other cancer treatment plans. It is often long, in some cases life long, and I think this can be difficult to comprehend - I know it was for us when we were told his treatment would last for over 3 years. Hopefully this explains a little more about the medication, chemo and otherwise, that Hugo takes for his type of leukaemia (acute lymphoblastic leukaemia).
Day in the Life - Bloods
Once a week a community nurse comes to our house to take some blood from Hugo via his bumpy. This blood is then sent to the lab and later that day, or the following day, we get a phone call with the results, which I write in our blue folder.
Day in the Life - Steroids
Hugo encounters many different side effects from both the leukaemia and the medication he takes for it, but on a day to day basis, steroids are definitely the cause of the most challenging (which is why they get a blog all to themselves!). He takes a 5 day course every 4 weeks, alongside the IV chemotherapy (together they are referred to as 'pulses'). The effects differ slightly each time and we never know quite what we are going to get from month to month. Some months they seem to hit harder and others we feel we have gotten off lightly.
Day in the Life - Hospitals
Labels:
bone density scan,
GOSH,
maintenance phase,
nerve conduction,
physio,
Vincristine,
x-ray
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Hugo started the maintenance phase of his treatment plan in January 2016. It's the final phase of treatment and is made up of 12 cycles, each of which are 12 weeks long. However, each 4 week block is the same so we tend to count in months rather than cycles.
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