Showing posts with label cytarabine. Show all posts
Showing posts with label cytarabine. Show all posts

Bye Bye Delayed Intensification

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Delayed Intensification, phase 4, is over, woo hoo!

Unsurprisingly, Hugo and his daddy managed just fine with the blood transfusion. The colour is slowly returning to his cheeks and his energy levels that were so zapped during phase 4 are on the up again.

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Restoring a Little Balance

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Welcome to 2016!  Well we nearly welcomed in the new year from a hospital bed - another narrow escape.  Hugo's temperature went up during the early evening.  It wasn't quite high enough for immediate action so we kept an eye on it with crossed fingers.  It fluctuated for a couple of hours before coming down and staying down, much to our relief.  We felt very fortunate to have avoided a hospital stay again and it was lovely to have both boys tucked up in their own beds as we saw in the new year, albeit with no fizz - just in case a hospital dash became necessary.

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So this is Christmas

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It was a close call, the week leading up to Christmas had seen 4 hospital visits, only one of which had been scheduled, but we made it through Christmas with no hospital stays, yay!

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Phase 4 Part 2

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So we are now in the second part of phase 4.  Along with the cyclophosphamide, Friday's visit to GOSH saw us restarting the dreaded mecaptopurine.  Another 2 weeks of the yucky, nil by mouth chemo that Hugo really dislikes.

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