Wonderful Giraffes

Oct
19
2015
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Day 95 of Hugo's treatment sees up back at GOSH for high dose methotrexate round 3. As usual we receive a warm welcome from the wonderful nurses on Giraffe ward.  We have been on Giraffe ward for all of our stays so far, even though there are 2 other oncology wards.  Giraffes are Henry's favourite animal so it seemed fitting and strangely comforting when they brought us here after Hugo was diagnosed, like this was the right place for us to be.  The ward is starting to feel like a second home and the nurses, many of whom have been part of Hugo's journey from the beginning, are starting to feel like friends.  They have supported not just Hugo, but all of us.  Building our knowledge and our strength.  Giving us the confidence to continue when they are not by our side.


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Relishing Normal

Oct
16
2015
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We have been having a lovely normal week at home.  We've had the car serviced, been to Henry's parent's evening, I even managed to get my hair done.  This is excitement these days, getting to be normal.

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A Constant Supply of Gingerbread Men

Oct
8
2015
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Since this journey began, I've found myself on occasions drifting into a kind of glazed daydream, pining for all the things we are missing out on since Hugo was diagnosed.

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A Mini Break

Oct
6
2015
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We have just experienced our first unscheduled hospital stay.  I suppose this is what we have been waiting for ever since we came home.  I suspect we are lucky to have made it this long.

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