Flying High

Aug
28
2015
5
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So another big day has arrived.  We were heading up to GOSH where they would give us the results of Hugo's MRD test.  The result that would tell us if he'd achieved remission.  Whether he would be classed as low risk or high risk.

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Trust in Us

Aug
24
2015
4
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Since this journey began, many people have told me how well I'm doing, how well I'm coping.  I know they mean well and I view it as a compliment that people think I'm doing well.  It gives me comfort that I am providing the strength and stability that Hugo needs me to.  That I am getting something right in this mess of a situation.  But, it has also made me question how I 'should' be doing. Am I in denial? Has the enormity of the situation yet to hit me?  Or worse, am I just an unemotional, insensitive person?


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Beginnings and Endings

Aug
22
2015
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The big day had arrived, my little brother was getting married!  Hugo was well enough for me to feel comfortable leaving him, so I put on my frock, glammed myself up, then Henry, my gorgeous date for the day, and I headed off to Islington.

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Minimal Residual Disease

Aug
18
2015
0
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Today saw another trip to GOSH for Hugo, myself, and Richard, and another sleepover for Henry.  Hugo was having a dose of chemotherapy and a bone marrow aspirate.  These are not new for Hugo but today was different, today was a big one.  Today they would be testing to see if Hugo had achieved remission.

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Baby Steps

Aug
14
2015
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Summer is well and truly upon us, even if in true British style, the weather is less than sunny.

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The Guilt and the Fog

Aug
8
2015
0
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Today I went for a haircut.  It's my brother's wedding in 3 weeks and I'm very much hoping to make it.  I wanted to hide the grey, of which I'm sure there is more of since this journey began.  I didn't want to feel like the frumpy older sister.  There are more important things to worry about, but I was conscious of the comfort eating and lack of exercise of late (not that there had ever been much in the way of exercise!).  I feel like this journey has aged me, in just this short space of time.  So, I went to get my hair done.  And I felt guilty.  I felt guilty for doing something for me.  Surely Hugo should be getting my full attention?  We'd been home from hospital for less than 2 weeks, how selfish was I to be leaving him already?  (I should point out that he was with his dad, not home alone fending for himself!).

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A Week in the Life

Aug
7
2015
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This past week has seen us back at GOSH, this time Hugo was an outpatient on Safari ward.  He was in for another bone marrow aspirate and some vincristine administered through wiggly.

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What If?

Aug
2
2015
0
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The weather has been warm and the boys had a great time out in the garden this weekend.  Henry in the paddling pool and a still non-walking Hugo sitting in a garden chair playing with toys.

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