So this is Christmas
Dec
27
2015
COM
Labels:
acute lymphoblastic leukaemia,
childhood cancer,
cytarabine,
mercaptopurine
·
Posted by
Lisa Griffiths
at
15:56

Phase 4 Part 2
Dec
22
2015
COM
Labels:
acute lymphoblastic leukaemia,
childhood cancer,
cyclophosphamide,
cytarabine,
GOSH,
Great Ormond Street Hospital,
mercaptopurine
·
Posted by
Lisa Griffiths
at
18:39

He's Back!
Dec
18
2015
COM
Labels:
acute lymphoblastic leukaemia,
childhood cancer,
cyclophosphamide,
Red Arrows,
Tottenham Hotspur
·
Posted by
Lisa Griffiths
at
20:51

Tough Days
Dec
12
2015
COM
Labels:
acute lymphoblastic leukaemia,
childhood cancer,
neutropenia,
neutropenic,
steroids
·
Posted by
Lisa Griffiths
at
20:21

Hugo has finished the second week of steroids, which again saw disturbed nights with painful legs and tummy. He has been completely wiped out and has spent most of the last week lying on the sofa with his precious bunny. He is still neutropenic so we are on edge, expecting him to come down with an infection and the thermometer has been in regular use.
A New Altered World
Dec
8
2015
COM
Today Richard had to go into work early. This meant I was on my own with the boys, rushing around trying to get us all ready and out of the door at a decent time. It meant I had to take a tired, listless, neutropenic Hugo on the school run which is something I would really have rather avoided. But that's not why it was awful.
A Badly Decorated Christmas Tree
Dec
6
2015
COM
Labels:
acute lymphoblastic leukaemia,
childhood cancer,
doxorubicin,
febrile neutropenia,
neutropenia,
neutropenic,
neutrophils,
steroids,
Vincristine
·
Posted by
Lisa Griffiths
at
20:18

Delayed Intensification
Nov
20
2015
COM
Labels:
acute lymphoblastic leukaemia,
childhood cancer,
delayed intensification,
doxorubicin,
GOSH,
Great Ormond Street Hospital,
lumber puncture,
steroids,
Vincristine
·
Posted by
Lisa Griffiths
at
20:17

Raising the Bar
Nov
13
2015
COM
Labels:
acute lymphoblastic leukaemia,
childhood cancer,
mercaptopurine
·
Posted by
Lisa Griffiths
at
20:13

I gave Hugo his last dose of mecaptopurine earlier this week. He will have to resume taking it in a few weeks, but for the moment it's off the drugs menu. I did a little celebratory dance and song, although I'm not sure Hugo was too impressed. It has been so good to be able to get him up from his naps without the syringe of doom in my hand. No tears, no struggle, just happy Hugo. We can now eat whenever we like, unrestricted by Hugo's 'non eating time', which I know Henry in particular will be pleased about. Hugo and I used the occasion to have a biscuit - any excuse!
Roar!
Nov
2
2015
COM
Labels:
acute lymphoblastic leukaemia,
childhood cancer,
GOSH,
Great Ormond Street Hospital,
lumber puncture,
methotrexate
·
Posted by
Lisa Griffiths
at
16:28

Wonderful Giraffes
Oct
19
2015
COM
Labels:
acute lymphoblastic leukaemia,
childhood cancer,
GOSH,
Great Ormond Street Hospital
·
Posted by
Lisa Griffiths
at
20:23

Relishing Normal
Oct
16
2015
COM
Labels:
acute lymphoblastic leukaemia,
childhood cancer,
GOSH,
Great Ormond Street Hospital,
methotrexate
·
Posted by
Lisa Griffiths
at
20:07

A Constant Supply of Gingerbread Men
Oct
8
2015
COM
Labels:
acute lymphoblastic leukaemia,
childhood cancer,
childhood leukaemia
·
Posted by
Lisa Griffiths
at
20:38

A Mini Break
Oct
6
2015
COM
Labels:
acute lymphoblastic leukaemia,
childhood cancer,
GOSH,
Great Ormond Street Hospital
·
Posted by
Lisa Griffiths
at
20:57

Interim Maintenance
Sep
28
2015
COM
Labels:
acute lymphoblastic leukaemia,
childhood cancer,
GOSH,
Great Ormond Street Hospital,
interim maintenance,
lumber puncture,
methotrexate
·
Posted by
Lisa Griffiths
at
14:34

It's only hair
Sep
17
2015
COM
Labels:
acute lymphoblastic leukaemia,
childhood cancer,
hair loss
·
Posted by
Lisa Griffiths
at
14:11

We're going to the Zoo!
Sep
13
2015
COM
Labels:
acute lymphoblastic leukaemia,
consolidation,
GOSH,
Great Ormond Street Hospital,
mercaptopurine,
methotrexate,
UKALL 2011
·
Posted by
Lisa Griffiths
at
14:28

A Letter to my Son
Sep
12
2015
COM
When we were at the hospital in those dark and difficult days after your diagnosis, the doctors talked to us about the barrage of drugs you would need to take. They tried to prepare us for what was ahead, for the side effects you may potentially experience. The list was long and scary and I worried that somewhere in the process of trying to heal you we would lose all the little bits of you that make you who you are. That our happy, loving, easy going, sensitive child might disappear before our eyes, replaced with a child I no longer knew.
Grandad on Duty
Sep
5
2015
COM
Labels:
acute lymphoblastic leukaemia,
childhood cancer,
GOSH,
Great Ormond Street Hospital,
lumber puncture,
mercaptopurine,
methotrexate,
UKALL 2011
·
Posted by
Lisa Griffiths
at
16:15

Consolidation
Sep
1
2015
COM
Labels:
acute lymphoblastic leukaemia,
chemotherapy,
childhood cancer,
co-trimoxozole,
methotrexate,
steroids
·
Posted by
Lisa Griffiths
at
13:34

Flying High
Aug
28
2015
COM
Labels:
acute lymphoblastic leukaemia,
chemotherapy,
childhood cancer,
childhood leukaemia,
consolidation,
GOSH,
Great Ormond Street Hospital,
lumber puncture
·
Posted by
Lisa Griffiths
at
21:14

Trust in Us
Aug
24
2015
COM
Beginnings and Endings
Aug
22
2015
COM
Minimal Residual Disease
Aug
18
2015
COM
Labels:
acute lymphoblastic leukaemia,
bone marrow aspirate,
chemotherapy,
childhood cancer,
GOSH,
Great Ormond Street Hospital,
induction,
minimal residual disease,
remission,
Vincristine
·
Posted by
Lisa Griffiths
at
13:39

Baby Steps
Aug
14
2015
COM
Labels:
acute lymphoblastic leukaemia,
childhood cancer,
Vincristine
·
Posted by
Lisa Griffiths
at
11:48

The Guilt and the Fog
Aug
8
2015
COM
A Week in the Life
Aug
7
2015
COM
Labels:
acute lymphoblastic leukaemia,
ALL,
bone marrow aspirate,
GOSH,
Great Ormond Street Hospital,
Pegaspargase,
Vincristine
·
Posted by
Lisa Griffiths
at
14:26

What If?
Aug
2
2015
COM
Labels:
acute lymphoblastic leukaemia,
ALL,
childhood cancer,
children's leukaemia
·
Posted by
Lisa Griffiths
at
21:15

The New Normal
Jul
31
2015
COM
Labels:
acute lymphoblastic leukaemia,
ALL,
childhood cancer,
children's leukaemia,
dexamethasone,
Port,
steroids
·
Posted by
Lisa Griffiths
at
20:50

It's strange being out and about. I am very self conscious, like everyone can tell that things have changed, that I am now different. I feel like people are staring at Hugo, even though no one has any reason to and I know it's all just in my imagination. Hugo of course is taking it all in his stride and is loving being out and about after his 15 day confinement.
Home Sweet Home
Jul
28
2015
COM
Labels:
acute lymphoblastic leukaemia,
ALL,
GOSH,
Great Ormond Street Hospital
·
Posted by
Lisa Griffiths
at
18:19

We prepare to leave armed with a large bag of medication, with numerous leaflets and booklets. We have a medical kit in case of accidents with Hugo's wiggly, and a blue folder with the rather catchy title of 'Family Held Record - Paediatric & Adolescent Cancer'.
Freedom!
Jul
23
2015
COM
Labels:
acute lymphoblastic leukaemia,
ALL,
blood transfusion,
Pegaspargase
·
Posted by
Lisa Griffiths
at
17:15

Freedom! Well almost. Perhaps a small step towards freedom is a more accurate description. Today we have been allowed outside. After a blood transfusion yesterday, Hugo was taken off fluids so is no longer hooked up to a drip, there is no trolley to trundle round behind us everywhere we go.
Teardrops
Jul
20
2015
COM
Labels:
acute lymphoblastic leukaemia,
ALL,
chemotherapy,
Port,
Vincristine
·
Posted by
Lisa Griffiths
at
22:30

Phase 1 - Induction
Jul
17
2015
COM
Labels:
acute lymphoblastic leukaemia,
ALL,
bone marrow aspirate,
chemotherapy,
dexamethasone,
GOSH,
Great Ormond Street Hospital,
induction,
lumber puncture,
methotrexate,
UKALL 2011
·
Posted by
Lisa Griffiths
at
20:08

The Moment
Jul
13
2015
COM
Labels:
acute lymphoblastic leukaemia,
ALL,
childhood cancer,
children's leukaemia,
leukaemia diagnosis,
leukaemia symptoms
·
Posted by
Lisa Griffiths
at
21:12

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