Tough Days
Hugo has finished the second week of steroids, which again saw disturbed nights with painful legs and tummy. He has been completely wiped out and has spent most of the last week lying on the sofa with his precious bunny. He is still neutropenic so we are on edge, expecting him to come down with an infection and the thermometer has been in regular use.
A New Altered World
Labels:
acute lymphoblastic leukaemia,
childhood cancer
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Today Richard had to go into work early. This meant I was on my own with the boys, rushing around trying to get us all ready and out of the door at a decent time. It meant I had to take a tired, listless, neutropenic Hugo on the school run which is something I would really have rather avoided. But that's not why it was awful.
A Badly Decorated Christmas Tree
Delayed Intensification
Raising the Bar
I gave Hugo his last dose of mecaptopurine earlier this week. He will have to resume taking it in a few weeks, but for the moment it's off the drugs menu. I did a little celebratory dance and song, although I'm not sure Hugo was too impressed. It has been so good to be able to get him up from his naps without the syringe of doom in my hand. No tears, no struggle, just happy Hugo. We can now eat whenever we like, unrestricted by Hugo's 'non eating time', which I know Henry in particular will be pleased about. Hugo and I used the occasion to have a biscuit - any excuse!
Roar!
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